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Abstract

Abstract

Objective: To explore the experiences of ethnic minority patients with ALS about neurological care fairness and cultural sensitivity.

Methods: Eight self-identified, ethnic minority ALS patients, recruited through online forums, participated in the study by answering questions about their demographics as well as questions about their past care experiences. The data obtained was analyzed through the thematic analysis approach to determine consensus and patterns.

Results: Participants reported varied experiences, with some expressing satisfaction in their care, while others highlighted issues such as perceived discrimination, lack of cultural sensitivity, communication challenges, and the need for self-advocacy. Some highlighted the need to make the healthcare provider’s workforce culturally sensitive and diverse.

Conclusion: The findings show that ethnic minority ALS patients encounter a great deal of inequality in receiving adequate care, making cultural competency in neurological health a major concern. Subsequent studies are needed to identify and promote interventions for the improvement of the equity and cultural competency of ALS care.

MGreen_ALS Care Revisions.docx (27 kB)
Revised manuscript

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